04 May GoFundMe Donation
Posted at 11:35h
in News
We would like to thank Odette for her donation thru GoFundMe...
29 Jan Fietsen voor het Christianson Syndroom
Posted at 23:06h
in News
Fietsen voor het Christianson Syndroom ...
18 Feb Please vote for CS-Europe
Posted at 11:15h
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https://kro-ncrv.nl/acties/actie-warm-hart/inzendingen/stichting-christianson-syndroom-europa-cs-europe-40657?WebID=f61c29bac1814001a425d18c91d9826beaa603943068977e14c64640ef63af47&at_medium=email&at_emailtype=promotion&at_campaign=kroncrv_AC3-15704_KRONCRV_AWH_Deelnemers_Start_Stemmen_20230214&at_creation=uitnodiging&fbclid=IwAR0qg_NAjaLPQonDpUEwDViDRNoj-CSx2yqm1I3QOtWeBO_I7ws8PUs4Fgo ...
14 Oct Sponsorwalk Stage 3
Posted at 18:09h
in News
October 14, 2022, 09:30 we will start again. We, Marie-Claire and Monique, are going to walk the 3rd stage of the Hilligen trail (± 24 KM). This stage goes from Volthe (24) to Tubbergen (32) We do this to raise money for our foundation that is...
26 Aug Sponsorwalk Stage 2
Posted at 14:44h
in News
August 26, 2022, 09:00 we will start again. We, Marie-Claire and Monique, are going to walk the 2nd stage of the Hilligen trail (± 20 KM). This stage goes from Oldenzaal (8) to Volthe (24). We do this to raise money for our foundation that is...
06 Jun Sponsorwalk Stage 1
Posted at 09:45h
in News
We, Marie-Claire and Monique, are going to walk the Hilligenpad route (105 KM) in 5 stages starting June 11, 2022. The first stage is Hof Espelo – Oldenzaal (20 km): during this stage we walk through a hilly terrain and we pass, among other things, the Hilligen Huesken,...
10 Sep Family Snijder publication in Tubantia
Posted at 12:42h
in News
Vincent (links) en Maurice hebben de zeldzame ziekte Christianson syndroom, waar slechts zes Nederlandse kinderen aan lijden © Robin Hilberink Josien Kodde 7 sep. 2019 Maurice en Vincent uit Ootmarsum hebben een zeldzame ziekte: ‘Als ouder wil je strijden’ Reportage OOTMARSUM - Maurice (16) en Vincent (14) Snijder...
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