We are the family Snijder from The Netherlands and our sons Maurice (2003) and Vincent (2004) were diagnosed with Christianson Syndrome in 2012.
This website is dedicated to Maurice and Vincent and all others with CS.
After attending the USA Conference in 2013 and 2015, and the Canadian Conference in 2017, we decided to do the same for all families with Christianson Syndrome boys in Europe.
John, Maurice, Monique and Vincent.
Christianson Syndrome Europe values professionalism, transparency and good governance. Christianson Syndrome Europe is therefore broadly structured according to the criteria of the Central Fundraising Office (CBF). Yet we do not have a CBF seal of approval. This is a conscious choice. We spend every cent we receive from donors on research, information and fellow sufferers’ days. It is one of our fundamental principles. Although we fully agree with the idea of reliability behind this quality mark, participation would conflict with that. We keep our promises to donors and there is no one-off expenditure on the quality mark and an annual contribution that depends on the benefits.
Christianson Syndrome Europe, however, endorses the reliability concept of the CBF quality mark (www.cbf.nl). It sets criteria for the structure of Governance, Policy, Fundraising, Information and Communication, Use of resources and Accountability.
Christianson Syndrome Europe is basically set up according to the criteria of the CBF.