Our Mission
To advance the awareness and treatment of Christianson Syndrome through education and information, research, advocacy and support for individuals with Christianson Syndrome, their families, and other concerned parties.
To advance the awareness and treatment of Christianson Syndrome through education and information, research, advocacy and support for individuals with Christianson Syndrome, their families, and other concerned parties.
Christianson Syndrome Europe is a non-profit organization founded by Monique & John Snijder in September 2017 in honor of their sons, Maurice & Vincent. Maurice & Vincent were diagnosed with Christianson Syndrome in April 2012.
To advance the awareness and treatment of Christianson Syndrome through education and information, research, advocacy and support for individuals with Christianson Syndrome, their families, and other concerned parties.
Christianson Syndrome Europe is a non-profit organization founded by Monique & John Snijder in September 2017 in honor of their sons, Maurice & Vincent. Maurice & Vincent were diagnosed with Christianson Syndrome in April 2012.
After searching the internet, we found the Christianson Syndrome Association and the Facebook-Group. In 2013 we were invited to attend the “Inaugural Christianson Syndrome Association conference: families meeting for the first time” in Rhode Island, Providence, USA. It instantly felt like coming home. Because we felt so closely connected after 2013, we ofcourse visited the 2015 and 2017 conference also. The family-feelings and experiences we had in North-America, we want to bring to Europe and THAT is why we created CS-EUROPE.
The Christianson Syndrome Association is a similar association to ours. It was founded by Debbie Nash and her family in August 2011 in honor of her son, Andrew. The goal is to unite and reach other families whose children are affected by Christianson Syndrome and to ultimately find a treatment to help our boys.